As most of you well know, I never made it to Otakon. I went into an Addison's crisis. And if the first doctor at Johnson Memorial had called my Dr,, since I gave him the card for his phone.. I coulda had corosol shots enough go keep on goin. But I just got sicker and sicker. But we've been through this part. Let's pick up from where I was from the last post.
Saturday morning I was brought home from Franklin, my doctor didnt see me. He was off, so the ER guy did and he sent me home. Having afull blown crisis. Sent me home. So we tried everything. The meds, the supposatories. Nothing worked. And in case you guys don't know? Addison's Crises can send you into a coma. All Sunday we tried everything, and since Dr. Reid would be back at Williamson County Medical Center Monday, that we'd go and see if they could do anyhing else. Well, they admited me. They put an IV line in my Jugular. My arms are black and blue from three hospitals searching for veins in the most painful places. Now I havehad a pickline before. I was so dehydrated, when they started putting it. It scraped against my veins. She knew it wasn't just nerves pain, it was pain pain. So she stopped, said we'd get more fluids and see how it was going to go.
But then Dr. Reid wanted to have a Hickman line put in. A pickline, is a temporary catheter tha goes into the arm and has rwo ports. One for drawing blood, one for IV/medicine shots. And they come out of you before you go home. And it's a sterile procedure, so all they do is Lidocaine it up so you won't feel it. And they barely found a vein. Bu anyway. A Hickman line is a mainline in my chest. Around the right upper side, they cut an incision, make a pocket and attach his EKG size square and hook your veins to it and it has two ports. I hought I was gonna be awake. Nope. I was under full aneshetic. Breathing tube down throat and everything but I didnt remember anything once they knocked me out. Next thing I was in recovery with morphine. So what will remain behind once the bandages are gone are two tubes with caps. One for drawing blood, and one for putting IV and shot medications in, when needed. Since I'm up at this hospital all the time. I mean just think how many times I've been admited this summer and seen this doctor. A LOT. And I'm a bad stick, and they need to get medicine or fluids in me fast, I have this permanent port where they can just do that. Also, I live an hour and a half away from this hopsial. And now, if I start getting like this, he can send home health care out to me to administer drugs and IVs. And well, I can give myself drugs when I need it, once I learn how to use it. Bust still, it's stitched up right now and no matter how I move it hurts.
My nausea is pretty much under control.. it's not near as bad as it had been. Five six days of vomitting. I'm finally keeping food and drink down. My cortosol levels are slowly getting back to normal. And apparently, you can go into a crisis whether you take your meds or not. A simple cold, can shove you into a crisis and you can end up in a coma. But, I am keeping some clear liquids down, and some solid food. But I'm still in bad pain. My guts hurt, my back hurts and my chest hurts where they put me on pain killers every two hours. It'll get a bit better, then hurt. They're trying to balance out the equaition I guess. Get my pain managed. I have another test to do in the morning. I dont even know if they're going to use the hickman until I go home. But he has me draw soo much blood. And within a few years, pending not infetion I can have it removed. So, it's a complicated and messy thing. But yeah. In the long run, the Hickman is good since whenever I just hadve office visits he wants like twenty vials of blood. Damn hematologist. I have another stomach emptying test to do tomorrow.
So I have no idea when I'm going home. I'll cross my fingers and hope it's tomorrow but it won't be. He also thinks, that I had some sort of fungal/mold infection. He's doing this big research study with Harvard on it. And my blood had come back from Cali, testing positive for them. So he's pumping me with anti mold/fungal stuff. He thinks it might be in my stomach, but it's just so hard to treat. This ontop of everything else, ontop of Addison's disease, thrush, and a UTI.
So my life sucks balls. I had planned so long and worked for that convention since the year before I didn't go because I was visiting
wasabikyo. Which was fun as hell except for the asthma. I'm allergic to cats but I have one. She has a bunch and dogs, and her mother smoked. Oh I could barely breathe. But we had fun jrockin it out. And oggling Miyavi like the horny school girls..we..weren't? But lately his music has been sucking, and so have a lot of other bands I like. Which depresses the hell out of me.
So. Let's change tones here. Get a little more positive. With this hickman line in, I'll be able to carry my cortosol shots with me and if I get ill, I give myself a shot and other shots. Now, it's not like just having an upset stomach. It's absolute hell. Sam, Stephanie, and Amber can attest to that one. So I can go to cons. Now, what blows is that because of this illness, and because of my social security stuff? I won't be able to go to school or work for up to two years. And mom just can't pay for me to go to all these cons by herself. I usually make it with my own cash but my bank is running low. But yeah here is my question for everyone.
What cons do you have lined up to attend this year? Since a lot of us know one another we could get a group and split the fees so they won't be so heinous. The room costs. And, I'm also just curious of who is going to what. I hate driving by myself to cons too. So I don't know what I'm gonna do about Nekocon. But I promised Janie I'd be there, most likely sporting the Zero's fake extensions. Squeee, I look at that waterbottle everyday. Anyway. Here is my possible con list for this year attendants. So yeah if you're going, or wanna go.. need a place to stay or..psst.. could help find me a place to stay..if you need a ride there, my car is always open if you can get to where I am in TN. I just find it the most fun when people come to your house and you carpool to the con. Or pick up someone on the way. It's always more fun with more people. And right now, I am really trying to hunt down a room for AWA, even though since I got sick my mother is all bitchy about me going in .... when is it. A month or something. So. ANYONE GOT SPACE. ::cough::
Con List.
Anime Weekend Atlanta(AWA) - Definite.
Nekocon - Definite. and already have a place to stay there.
Ohayocon -.. If I can get someone to go with me, if I can find a place to stay.
Katsucon- Same as above. Or have someone to meet up with.
MTAC - Definite.
ACEN - Maybe, if I can find someone to go, a place to stay, etc.
Otakon - Most definately next year.
Sugoicon - still unsure.
So the four definites are AWA, Nekocon, Mtac, Otakon.
This list could get longer or shorter. Kinda depends on where I feel like going and what friends I wanna hang with. But yeah, if you're heading to any of those.. need a ride or whatever, got space in your room, blah blah. Hit me up. Thanks for all the well wishes, I'm still in the hospital. Hopefully I'll be home this weekend.
Saturday morning I was brought home from Franklin, my doctor didnt see me. He was off, so the ER guy did and he sent me home. Having afull blown crisis. Sent me home. So we tried everything. The meds, the supposatories. Nothing worked. And in case you guys don't know? Addison's Crises can send you into a coma. All Sunday we tried everything, and since Dr. Reid would be back at Williamson County Medical Center Monday, that we'd go and see if they could do anyhing else. Well, they admited me. They put an IV line in my Jugular. My arms are black and blue from three hospitals searching for veins in the most painful places. Now I havehad a pickline before. I was so dehydrated, when they started putting it. It scraped against my veins. She knew it wasn't just nerves pain, it was pain pain. So she stopped, said we'd get more fluids and see how it was going to go.
But then Dr. Reid wanted to have a Hickman line put in. A pickline, is a temporary catheter tha goes into the arm and has rwo ports. One for drawing blood, one for IV/medicine shots. And they come out of you before you go home. And it's a sterile procedure, so all they do is Lidocaine it up so you won't feel it. And they barely found a vein. Bu anyway. A Hickman line is a mainline in my chest. Around the right upper side, they cut an incision, make a pocket and attach his EKG size square and hook your veins to it and it has two ports. I hought I was gonna be awake. Nope. I was under full aneshetic. Breathing tube down throat and everything but I didnt remember anything once they knocked me out. Next thing I was in recovery with morphine. So what will remain behind once the bandages are gone are two tubes with caps. One for drawing blood, and one for putting IV and shot medications in, when needed. Since I'm up at this hospital all the time. I mean just think how many times I've been admited this summer and seen this doctor. A LOT. And I'm a bad stick, and they need to get medicine or fluids in me fast, I have this permanent port where they can just do that. Also, I live an hour and a half away from this hopsial. And now, if I start getting like this, he can send home health care out to me to administer drugs and IVs. And well, I can give myself drugs when I need it, once I learn how to use it. Bust still, it's stitched up right now and no matter how I move it hurts.
My nausea is pretty much under control.. it's not near as bad as it had been. Five six days of vomitting. I'm finally keeping food and drink down. My cortosol levels are slowly getting back to normal. And apparently, you can go into a crisis whether you take your meds or not. A simple cold, can shove you into a crisis and you can end up in a coma. But, I am keeping some clear liquids down, and some solid food. But I'm still in bad pain. My guts hurt, my back hurts and my chest hurts where they put me on pain killers every two hours. It'll get a bit better, then hurt. They're trying to balance out the equaition I guess. Get my pain managed. I have another test to do in the morning. I dont even know if they're going to use the hickman until I go home. But he has me draw soo much blood. And within a few years, pending not infetion I can have it removed. So, it's a complicated and messy thing. But yeah. In the long run, the Hickman is good since whenever I just hadve office visits he wants like twenty vials of blood. Damn hematologist. I have another stomach emptying test to do tomorrow.
So I have no idea when I'm going home. I'll cross my fingers and hope it's tomorrow but it won't be. He also thinks, that I had some sort of fungal/mold infection. He's doing this big research study with Harvard on it. And my blood had come back from Cali, testing positive for them. So he's pumping me with anti mold/fungal stuff. He thinks it might be in my stomach, but it's just so hard to treat. This ontop of everything else, ontop of Addison's disease, thrush, and a UTI.
So my life sucks balls. I had planned so long and worked for that convention since the year before I didn't go because I was visiting
So. Let's change tones here. Get a little more positive. With this hickman line in, I'll be able to carry my cortosol shots with me and if I get ill, I give myself a shot and other shots. Now, it's not like just having an upset stomach. It's absolute hell. Sam, Stephanie, and Amber can attest to that one. So I can go to cons. Now, what blows is that because of this illness, and because of my social security stuff? I won't be able to go to school or work for up to two years. And mom just can't pay for me to go to all these cons by herself. I usually make it with my own cash but my bank is running low. But yeah here is my question for everyone.
What cons do you have lined up to attend this year? Since a lot of us know one another we could get a group and split the fees so they won't be so heinous. The room costs. And, I'm also just curious of who is going to what. I hate driving by myself to cons too. So I don't know what I'm gonna do about Nekocon. But I promised Janie I'd be there, most likely sporting the Zero's fake extensions. Squeee, I look at that waterbottle everyday. Anyway. Here is my possible con list for this year attendants. So yeah if you're going, or wanna go.. need a place to stay or..psst.. could help find me a place to stay..if you need a ride there, my car is always open if you can get to where I am in TN. I just find it the most fun when people come to your house and you carpool to the con. Or pick up someone on the way. It's always more fun with more people. And right now, I am really trying to hunt down a room for AWA, even though since I got sick my mother is all bitchy about me going in .... when is it. A month or something. So. ANYONE GOT SPACE. ::cough::
Con List.
Anime Weekend Atlanta(AWA) - Definite.
Nekocon - Definite. and already have a place to stay there.
Ohayocon -.. If I can get someone to go with me, if I can find a place to stay.
Katsucon- Same as above. Or have someone to meet up with.
MTAC - Definite.
ACEN - Maybe, if I can find someone to go, a place to stay, etc.
Otakon - Most definately next year.
Sugoicon - still unsure.
So the four definites are AWA, Nekocon, Mtac, Otakon.
This list could get longer or shorter. Kinda depends on where I feel like going and what friends I wanna hang with. But yeah, if you're heading to any of those.. need a ride or whatever, got space in your room, blah blah. Hit me up. Thanks for all the well wishes, I'm still in the hospital. Hopefully I'll be home this weekend.
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